The March of Dimes mission is to improve the health of babies and prevention birth defects, premature birth and infant mortality. We carry this mission through research, community services, education and advocacy to save babies' lives.
The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
MetLife Center for Special Needs Planning is dedicated to helping families secure both lifetime care and quality of life for their dependents with special needs.
The Caregiver Action Network (formerly National Family Caregivers Assocation, NFCA) is the nation’s leading family caregiver organization working to improve the quality of life for the than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.
The Family Caregiver Alliance (FCA) is a community-based, non-profit organization addressing the needs of families and friends providing long-term care for loved ones at home. They provide educational resources, advocacy and support to caregivers.
The CRD Network will create greater public awareness for rare disease, while connecting, educating and empowering the millions of families and caregivers affected, through an online community and collaborative portal.